This policy was last updated: 11 May 2018

How we will use your personal details

Action on Disability (AoD) takes your privacy very seriously. When you share information with us, we will always tell you how we will use it depending on how and why we are collecting the information. We always act on your instructions to put you in control of the information you share and your relationship with us.

We will not share your data for others’ marketing purposes.

Please be assured that you will not receive offers from other companies or organisations as a result of giving your details to us. We will not sell, rent or lease your personal information to any third parties.

How to stop or change how we communicate with you

If at any time you wish to stop or change how we communicate with you, or update the information we hold, please do get in touch. We will provide you with contact details or you can use the details at the bottom of this policy.

Our full privacy policy


Action on Disability takes your privacy very seriously and we want you to understand clearly how we use the Personal information we collect about you. When you share information with us, we will always tell you how we will use it depending on how and why we are collecting the information. This Privacy Policy applies to any personal information collected and used by Action on Disability. For the purpose of this policy, ‘personal information’ means information which can identify a living individual.

What we collect, why we collect it and how we use it

The type of personal information we collect will depend on why you are providing it and how we are using it – for example if you are making a donation, asking about volunteering opportunities or receiving a service from us. As an organisation we collect and use personal information for a variety of reasons and in a variety of ways, depending on the activity you are taking part in when you share the information. When we collect personal information, we will always explain clearly what information we are collecting, why we are collecting it and how we will use it. If you do not provide us with your personal information, we may not be able to provide you with any of our services. We will always make sure we have a lawful basis for processing your personal information. For more information on the lawful bases to process your personal information click here.

Legitimate Interests

If you receive a communication from us that mentions our “Legitimate Interest”, then please be assured you are still in control of how we use your personal information. “Legitimate Interest” is one of the lawful bases we can rely on to process your personal information, and when we use this basis we have to consider your privacy rights and whether these outweigh our legitimate interests. You can easily stop or change how we use your personal information, and we will explain how you can contact us to do so. Click here to find out more about what we mean by Legitimate Interests.

How we collect your personal information

We may obtain your information in the following ways:

Directly from you

If you give us your information directly for any reason – becoming a member or volunteer, receiving a service or making a donation, we will ensure you are given all the important information about how we will use and look after your information at the time.


If we receive your information from another source and not directly from you (for example by fundraising sites like Just Giving, or if we receive referral information about your support from other agencies) we will also ensure you are given all the important information about how we will use and look after your information as soon as possible and within one month of receiving your information (unless it is impossible to do so or would involve disproportionate effort). If it is disproportionate for us to contact you with this information, you can always find a copy of this privacy policy on our website.


When you visit our website

We do not use cookies on our website. Your data is not linked to any information you enter into any forms on our website (such as signing up for newsletters), or to any other information we hold about you. Read more about Safe use of the internet here.


When you access Action on Disability’s Social Media

We might also obtain your personal information through your use of social media such as Facebook or Twitter, depending on your settings or the privacy policies of these social media and messaging services. To change your settings on these services, please refer to their privacy notices, which will tell you how to do this.




When the information is publicly available

We might also obtain personal data about individuals who may be interested in giving major gifts to charities or organisations like Action on Disability. In this scenario, we may seek to find out more about these individuals, their interests and motivations for giving through publicly available information. This information may include newspaper or other media coverage, open postings on social media sites such as LinkedIn, and data from Companies House. This is a form of profiling (see below) to build up a picture of donors. We will not retain publicly available data relating to major donors without informing them, which will be done at the earliest practical opportunity.

Profiling and Automated Decision making

Profiling is any form of automated processing of personal data to build up a picture of a person, in particular to analyse or predict aspects about that person’s economic situation, personal preferences or interests. We may use the information we hold about you based on your interactions with us in order to build our relationship with you, offer you the right help or information and personalise things we offer to you. Automated decision-making takes place when an electronic system uses personal information to make a decision without human intervention. We will always inform you if we are processing your information in this way.

Who we share your information with

We do not sell, rent or lease the personal information we collect to any third parties. Depending on why you provided us with your personal information and how we are using it, we may need to share your information with other organisations or individuals, such as those that provide services on our behalf (e.g. printing and delivery of mailings, delivery of products, information on your support).

We will only provide these organisations and individuals with the personal information necessary to fulfil the purpose for which it was provided.

We have systems and processes in place to ensure your personal information is maintained confidentially and securely and that it is used only for purposes for which it was provided. Depending on why you provided us with your personal information and how we are using it, we may need to transfer your information outside the EEA, (for example some of systems we use to hold personal information may be provided by an organisation that stores the data on computer systems held outside the EEA). Although the country may not be subject to the same data protection laws as companies based in the UK, we will endeavour to make sure they provide an adequate level of protection in accordance with UK data protection law, or ensure that safeguards are put in place to protect your personal information. If you wish to know more about any transfer outside the EEA or the safeguards in place, please contact us using the contact details provided or at the bottom of this policy. We may also need to disclose your personal information to another organisation if we are required to do so to meet a legal obligation.

How we keep your Personal information secure

All personal information we hold about you will be kept securely, using a variety of security technologies and organisational procedures to help protect your personal information from unauthorised access, use or disclosure.

How long we keep your personal information

We will only keep your personal information for as long as it is required for the purpose we collected it, including if it is needed for any legal, accounting or reporting purposes. We will let you know how long we keep your personal information.

Your rights and controlling your personal information

You have the right to:

  • Be informed about what we are doing with your personal information;
  • Object to the processing of your personal information;
  • Request access to your Personal information (commonly known as a “data subject access request”);
  • Request us to update the Personal information we hold about you or delete the information we hold about you (although we will not be able to provide our services to you if you make this request);
  • Ask us to stop processing personal information about you where we are relying on a legitimate interest;
  • Ask us to restrict how we use your personal information for a period of time;
  • Request us to send another organisation information that you have provided to us in a computer-readable format;
  • Understand and input into a decision made by solely automated means if it has a legal or similarly significant effect on you;
  • Withdraw consent if that is the basis that we are relying on. We will inform you how to do this.

For further information on your rights If you are unhappy with how we handle your personal information, or how we handle any requests you make, please contact our Data Protection Officer using the details below. If our Data Protection Officer cannot address your concern, you can complain to the Information Commissioner’s Office: or call 0303 123 1113.

Changes to this Policy

We reserve the right to update this privacy policy at any time, and we will provide you with a new privacy policy when we make any substantial updates. We may also notify you in other ways from time to time about the processing of your Personal information.

Contact our Data Protection Officer

Our Data Protection Officer is responsible for making sure that we comply with our Privacy Policy and with all data protection regulations and law. Our Data Protection Officer can be contacted by calling 020 3080 0393 or writing to:

Data Protection Officer, Action on Disability, Normand Croft Community School, Lillie Road, London SW6 7SR.